The world wasn’t set up to save Grace. So Matt and Kristen did what any good parents would do — they set out to change the world.
We are dedicated to pioneering approaches to scientific exploration that are faster, less expensive and more collaborative. Our advances aren’t just bringing us closer to a cure for NGLY1 Deficiency, they are being used to discover and treat countless other diseases. In this way, our work doesn’t just help the few — it impacts the lives of billions.
Director of Patient Advocacy
Director of Genetics and Biochemistry
Chief Scientific Officer
Senior Vice President, Program Management
Chairman, President & Co-founder
Fortress Investment Group LLC
Oak Hill Capital Partners
Baylor College of Medicine