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Press Kit

OUR VISION

We see a world without NGLY1 Deficiency. The innovations we develop along the way will be used to treat and cure other diseases.

 

FACTS & FIGURES

For more facts and information, please download our press kit.

QUOTES

“We’re not just innovating for innovation’s sake. Our only measure of success is the positive impact we make in patients’ lives.”
-Kristen Wilsey, Co-founder, Grace Science Foundation; mother to child with NGLY1 Deficiency

“Curing NGLY1 Deficiency is only the beginning. The work being done by the Grace Science Foundation is going to help billions.”
-Dr. Shinya Yamanaka, Scientific Advisory Board & Research Team, Grace Science Foundation; Nobel Prize Laureate

“If we had all the time in the world, we’d probably do things differently. But we’re not making the rules or setting the timeline. NGLY1 Deficiency is doing that.”
-Dr. Kevin Lee, Chief Scientific Officer, Grace Science Foundation

For more quotes and information, please download our press kit.

RESEARCH FOCUS AREAS

For more information on our research and findings, please see our blog.

INDIRECT COSTS

The foundation has a strict policy that it does not cover overhead or infrastructure fees. The Principal Investigator or the Sponsoring Institution must find alternatives to cover these expenses or it must waive them. We are stewards of other people’s money and our war chest is limited. Given the ultra rare characteristics of NGLY1, we need every penny going to research.

CONTACT OUR PRESS TEAM

Download our press kit.

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