Demi is 18 and full of spunk

by Jolanda and John

Dear, dear Demi!

You've gotten to 18 years! We thought for the first few years that you would only see 5 years old. As a result, we took trips to swim with dolphins and you have even been in a helicopter. Our life with you was a real undertaking in a positive way. But you were getting older and then when you were eleven years old we got the right diagnosis named NGLY1.

You have changed our lives and we have changed. There have been some heavy bumps during your 18 years, but every time you managed to amaze and surprise everyone. Your strength, your humor and always being cheerful has made us realize what life is all about.  You love music, horseback riding and testing people now that you're a young woman. You're a girl with spunk and you can't speak, but your face says so much. Dear Demi we are so proud of you! You are a show stopper and we are happy that you are our daughter!

Dear, dear Demi,

You're 18 years old today! You are our sunshine and you're always happy. Nothing can makes you sad. You have so much humor, so much strength and are a girl with spunk. You cannot speak, but your face says it all.

You love music, horse riding and adult daycare these past 3 months. It's a joy to see you interact with new people. We are so thankful that you came into our lives. You have changed our lives, we're lucky to have you as a daughter and we are so proud of you!

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