Thomas’ Sixteenth: Surrounded & Supported by Family & Friends


by Christophe & Sylvie

Thomas is 16 today (July 29th). He lives in France and has 2 brothers, Romain (12 years old) and Quentin (6 years old, NGLY1 Deficiency).  Thomas loves music, TV and the swimming pool.

Thomas was diagnosed with NGLY1 Deficiency in 2015.  He has serious problems with his eyes and a scoliosis which will have to be operated by arthrodesis.  He has made progress after intensive rehabilitation therapies in Spain and Poland.  Thomas is surrounded by his family and friends to allow him to progress further.

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