About
Mission and vision
Our story
Leadership
Our work
Approach
Research Team
What is ngly1?
Updates
Blog
Press
Take Action
Patient Registry
Contact
Donate
DONATE
06.02.2022
Positively Adored: Michal’s 5th Birthday
-
Patient Stories
Patient Stories
04.23.2022
Birthday Poem for Saijayant’s 13th
Patient Stories
04.19.2022
Isabella’s 1st Birthday
Patient Stories
04.04.2022
Happiness and Joy for Vic’s 3rd Birthday
Resources
Filter by
Choose a category
All Stories
Breakthroughs
Events
In the Lab
In the Media
Patient Stories
Resources
Updates
6
2
04.08.2018
Intensive Therapy Program at NAPA Center
- Kristen Wilsey
Patient Stories
Resources
02.23.2018
2018 Grace Science Update
- Kristen Wilsey
Resources
10.19.2017
The Benefits of Chocolate
- Quirine Eijkenboom
Resources
08.25.2017
Families Sharing Knowledge about Therapies
- Quirine Eijkenboom
Patient Stories
Resources
08.03.2017
NGLY1 Knockout mice in Japan
Breakthroughs
Resources
02.26.2016
Diagnostic Resources
- Dr. Greg Enns
Resources
LOAD MORE
In the press
Join our community
Leave this field empty if you're human:
